Those of you that have read Rarity will understand that Vascular Ehlers Danlos Syndrome is a cause dear to my heart. VEDS is the rare and deadly form of EDS. But people who suffer from the other types of EDS are often plagued with pain, dislocations, POTS, dysautonomia, and other “invisible” issues. EDS is one of the most undiagnosed disorders in the world. It is thought that just 5% of EDS patients have actually been diagnosed…95% are undiagnosed or misdiagnosed. Because those with VEDS and EDS often look normal it is hard for others to appreciate the challenges they face on a day to day basis…until now. A good friend of mine teamed with another author and created Our Stories of Strength. It is first hand accounts of people and their strength as they face the many struggles
presented to them each day.
I’m pleased that the authors, Mysti Reutlinger & Kendra Neilsen Myles will be interviewed with me soon. I hope you all take the chance to read this book and see what incredibly strong people it takes to handle this chronic disorder.
Available in paperback or ebook at amazon.com: